It’s been 6 days
since our boys arrived. As you probably figured, they are spending their time
at the hospital NICU and will be there for 3-5 more weeks due to their
prematurity. When you look at the specific challenges that come with
prematurity, there are pretty much 4 categories: feeding, respiratory,
neurological, and cardio.
· Feeding - at birth, they were both fed thru an IV (sugar,
protein, fats) and began trophic feeds of breast milk through a tube that goes
into their tummy to stimulate digestion. Since then, Carter has advanced to
eating my milk alone and is continuing to increase his feeds. Logan is still
relying on both, but he's getting weaned off the the IV. We are beginning to
try eating at the breast, but their jaw muscles are just going to need some
time to get stronger. Learning to suck, swallow, and breathe at the same time
is a major milestone.
· Respiratory - they are breathing on their own, but all
their respiratory support is designed to help their lungs stay open and make
breathing less of an effort so they can use more energy on gaining weight.
Still, we have made baby steps in the right direction, advancing from a large
scary-looking device called CPAP to a nasal cannula which looks like 2 little
tubes going into their noses. Occasionally, preemies forget to breathe (this is
called apnea) because they wouldn't have to do that if they were still in
utero, so to help them remember, they get small doses of caffeine.
· Neurological - the effects of prematurity on the brain
will not be fully known for a long time. Things like cerebral palsy and autism
get diagnosed later in life when preemies are not hitting their "adjusted
age" milestones (they are 8 weeks premature, so their adjusted age is -8
weeks and will be 0 when they are 8 weeks old). However, we do have an
ultrasound of the brain scheduled for Sept 13th at 34+1 which will
tell us if there is any bleeding in the brain.
· Cardio - the main issue with heart prematurity is
occasional decelerations in the pulse (this is bradycardia). Sometimes, they
are caused by apnea (forgetting to breathe), sometime the baby just gets too
comfortable in their sleep and needs to be patted or rubbed to get their heart
rate up. This is a typical preemie issue and is a prime example of why
there are 2 babies to each nurse at the NICU - they really do need extremely
close monitoring before they grow out of these issues.
Before they can
come home, they don't need to be a certain weight, but they do need to 1)
maintain their body temperature on their own, 2) suck/swallow/breathe without
help for 8 feedings a day, and 3) breathe room air. As of now, all the issues I
explained above are typical and expected - nothing is permanent as far as we
know today. But it’s a lot to take in for new parents and comes with a heavy
emotional toll. We have been so lucky to have a ton of support around us
- from you guys, our families, from my moms of multiples club, and from the
hospital preemie group. We also have an amazing team of nurses who take care of
our boys. They are all extremely diligent and treat each child as if they were
their own. All the nurses have commented that Logan and Carter are equally
feisty and will be a lot of fun down the road.
I am sure within a
week, the lifestyle of daily trips to the NICU will be second nature for us.
For now, we just have to celebrate the baby steps we have made & put one
foot in front of the other every morning. We are optimistic that our little
guys are fighters and will soon be coming home with us. Each day is a milestone
when it’s your child...
We now get
why people told us that life of a NICU parent is a rollercoaster – you have
good days and you have not so good days with setbacks. Two steps forward, one step back. One would
think that in a way a parent of a NICU baby would get to “rest” more, but while
we don’t know any different, I can tell you that this is the most testing time
of our lives.
I made it my
priority to establish my milk supply as soon as possible and thankfully that hasn't been an issue. I continue to impress all the lactation consultants that
come to visit, but it comes at a cost of pumping every 2 hours around the
clock. M has been my main caretaker this
entire time and frequently got up at night with me to help. Even now at 5 days
postpartum, he still has more on his plate than ever. It’s almost like we’re
dealing with all the same challenges of parenting as other people, but our
family is still not 100% complete. It will be that way until the boys get to
come home one day when they are ready. With NICU babies, there is also the separation
anxiety of coming, going, calling nurses for updates, etc. I am tired of
hearing everyone from nurses to doctors to case managers telling me that my
risks of postpartum depression are greater than other people. It’s not something
I can control and we will need to be strong for them together.
Logan has dirty blonde hair and Carter has dark brown hair. Both of them have deep blue eyes.
Logan has dirty blonde hair and Carter has dark brown hair. Both of them have deep blue eyes.
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